My beloved Paradigm friends, and friends of friends……we have a friend in huge need. I am re-posting an email in hopes that it helps our friend Rowan, seeing as how I am not in a position where I can do anything else. And most of us ain’t either. Please pass this one on. Thanks.
Dear Friends and Friends of Friends,
What follows is an appeal for your help in meeting the uninsured medical expenses of a heart-lung transplant for me. That help can take a variety of forms.
The attached appeal focuses on monetary contributions and those are extremely important. If you are giving a check make sure that in the memo section you put “In honor of Rowan Wolf” otherwise the money will go as a donation to NTAF’s general operating fund and not to the regional restricted fund in my honor.
I realize that many of you are financially stretched, but there are other contributions that are also important and helpful:
– Pass this appeal on to others you know and ask for their help. For example, “Rowan is my friend and needs your help.”
– Volunteering to do fundraising from a garage sale to making an appeal in your place of worship, community organization, or place of business. If you do plan to raise funds, please contact Rebecca Carr at NTAF for the information you need. Her number is 800.642.8399 and her email is email@example.com
– If you have a web site, or belong to a social networking site, put up a link to my page at NTAF: https://www.ntafund.org/find-a-patient/profile/index.cfm/patient/E0F54FD8-C5F5-8B8D-0546303FF41A1F15
I have also started a series of sites called Rowan’s Heart. The purpose of these sites is to share the journey I am on. I am posting the story in multiple places because the network is wider that way. They are “mirrors” of each other, but different people use different services. Here are the links:
As you pass this appeal along, please pass along this part as well.
Thank you for all of your care and support.
I am writing you at this time to ask for your help. Those of you who know me well, know how difficult such an appeal is.
In January 2010 I was struck down by what was thought were pulmonary emboli. This took me out of teaching for the rest of the year. My heart and lungs continued to fail, with each day leaving me weaker than the last until July. Then a new pulmonologist, Maxine Dexter, went over my case with a fine-toothed comb and determined that I actually had pulmonary arterial hypertension (PAH or PH). This is a rare condition that increases the pressures in the lungs making them unable to function properly. This puts tremendous strain on the heart, and has seriously damaged mine. PH is a progressive and irreversible disease. My doctor started the long process of getting me evaluated for a heart-lung transplant, as this is the only cure for PH. Stanford Hospital has almost approved me and I will soon be on the transplant list. One of the hurdles in my path is being able to financially address the costs of transplant when I will be out of work for many months, and perhaps the rest of my life.
I have been tremendously lucky to have insurance and a job that has allowed me to continue to work part time and blessed to have my partner Kelly and a very supportive family. Transplants are tremendously expensive procedures, and the costs beyond transplant are large and some go on for the rest of one’s life. For example, I will have to go to Stanford at least once a year for follow-up care, and take anti-rejection medications costing in excess of $5000 a month for the rest of my life. Even with my health insurance coverage, it is estimated that I may have over $25,000 in transplant related costs for the first year and over $10,000 for every year thereafter.
To help alleviate the financial burden of transplantation, a fundraising campaign has been established in my honor with National Transplant Assistance Fund (NTAF) for my uninsured medical expenses. NTAF is a nonprofit organization that has been providing assistance to the transplant community for more than 25 years. Your tax-deductible contribution is greatly appreciated.
Please make check payable to: NTAF Northwest Heart/Lung Transplant Fund
*Note in memo section: In honor of Rowan Wolf
Send to: NTAF
150 N. Radnor Chester Road, Suite F-120
Radnor, PA 19087
To use a credit card, please call 800-642-8399 or visit http://www.ntafund.organd enter Rowan Wolf in the “Find A Patient” box on the homepage. Or go to my tribute page if you are getting the letter by email, and select “Contribute Now.”
If you are unable to help financially but still wish to assist with my fundraising efforts, I’d be so appreciative. Please pass on my information to others or call or email me or Rebecca firstname.lastname@example.org (800.642.8399 ) to volunteer as we move forward with planning fundraising events.
It is my hope that I will receive a transplant, heal and return to teaching and activism. I have been active in the environmental, animal rights, and social justice movements for most of my life and my goal is to continue my efforts to make this world a better place for all living creatures.
Kelly, and our four legged ones (our three dogs and two adopted feral cats), and I are tremendously grateful for your positive thoughts, prayers, contributions, and help.
With kind regards and love,
Rowan Wolf 503.261.9488 email@example.com
Contributions are tax-deductible to the extent allowed by law. This campaign is administered by the National Transplant Assistance Fund, a 501(c)(3) nonprofit providing fundraising assistance to transplant and catastrophic injury patients. Information: 800.642.8399